I’m talking fall-asleep-at-Starbucks-with-a-venti-in-my-hands next-level tired! XLP  is a illness that effects 1 in a 1,000,000 men. He would explode with happiness when he got to get out of his chair at school to play with his friends on the mat. Meet Ardra Shephard of Tripping on Air and Sickboy Podcast: It’s important for me to demystify the connection between disability and beauty for totally selfish reasons, like, I refuse to stop being pretty just because I have MS. I thought my life was over. From bouncing off windshields like a basketball to a mysterious theft of $400 glasses to lacerated internal organs. You won’t see me using sign language or using subtitles though...I actually function just fine, to the point that you would probably never realize I am considered clinically deaf. Eventually, I realized this was giving MS a different kind of power over me. He would wave his arms and smile and giggle as the ramp lifted his chair onto the bus. Join the tens of thousands of people across the world in changing the conversation surrounding illness, and dying with laughter in the process. Going through your entire life having difficulty communicating your thoughts is frustrating, especially when you know exactly, for the most part, what you want to express. I love my closet and whole-heartedly believe in the transformative power of fashion. I’m not usually one for the uncomplicated. Sickboy Podcast. Dandelion Tones. Sickboy Admin May 18, 2016 Comment. Join hosts Jeremie, Brian and Taylor as they hangout and laugh about the absurdity of illness and life! Copyright © 2017-2020 Trend-able.com All Rights Reserved. But if I’m being real, it’s Netflix. Sickboy Podcast . My blog is a way for me to declare that, yeah, I have MS and I’m actually pretty kick-ass. Nobody does. It’s such a drag to lay it all out. Sickboy Podcast is hilarious, ridiculously insightful and absolutely determined to break down the stigma associated with illness and disease! Wed 31 Oct 2018 00.00 EDT. Sickboy follows 29-year-old Jeremie Saunders as he lives openly with Cystic Fibrosis and devotes his life to removing the stigma attached to chronic illness and disease. It’s tough, but we need to be the ones who stand-up (or sit-up) and say, we’re here and we’re as entitled to beauty, and sex, and joy, and life as much as everyone else. Ardra was named one of the Top 50 MS bloggers “in the universe” by feedspot.com, one of the Top 25 MS bloggers by healthlabs.com, and was featured on Sickboy Podcast (October 2017). Regular price From $14.99 . Regular price From $19.99 I cried a lot. Six years ago, I started walking with a clomp – a limp. Finding out you have stage 4 metastatic breast cancer in your 20s is about as fun as it sounds. 236 Likes, 20 Comments - Sickboy Podcast (@sickboypodcast) on Instagram: “Recording some episodes in Vancouver this week - what are some topics you’d like to hear us cover?…” The Hooded Romper. I’m a mix between investment pieces and comfy lounge wear, but I try to love everything in my wardrobe. It's given him a great story that takes him too long to tell. I clammed up and began to reject the idea that MS could have anything to do with my identity. I speak four and would love to learn more. I hope that while reading this, you will come to understand how this has  has affected my life. Regular price From $45.00 Experiencing a mental illness and trying to tell people about it is kind of like convincing people that you’ve experienced a ghost. Sick Boy Podcast. In April 2018 I found a small lump on my bikini line. Source: Sickboy Podcast Mask Deniers & Pseudoscience BS w/ Dr. David Kyle Johnson This Friday we're jamming on Big fines, big advancements and big wankers in the world of "science". Accessories for Spring. Sickboy DMC Hooded Sweatshirt. 934 Likes, 35 Comments - Sickboy Podcast (@sickboypodcast) on Instagram: “What better way to cap off our mini Ontario tour than with an eye opening and beautifully…” I was tired and my mind and alcohol had beat me down. It can take years to get an MS diagnosis, but I nailed it in just 6 weeks. Everything about my daily life is planned around MS. It is so refreshing to be able to openly discuss something that is a huge part of your life without trying to find pleasant ways to word it to avoid making others uncomfortable. I was initially open about my diagnosis, and this had consequences I hadn’t expected. Shout out to the… Join hosts Jeremie, Brian and Taylor as they hangout and laugh about the absurdity of illness and life! But I'm Only 26! Regular price $20.00 I’ve struggled with what standing behind a mobility aid does to my appearance and have even tried to dress my Nexus (rollator) up by painting the orange, plastic knobs with a gun-metal Dior nail-polish. Censorship Unisex T-Shirt. 10K likes. Taylor is extremely lucky to be alive and our baby boy has a long road to recovery. It’s exhausting having to navigate peoples’ misinformation. The Sickboy Podcast began in 2015 and destigmatizes what it’s like to live with chronic illness. Join hosts @JeremieSaunders, @SteverBrian, and @TaySaysRelax as they hangout and laugh about the absurdity of illness and life! Hey I am Adam Delorey, I went into heart failure at the age of 13 when my ejection fraction (heart function) was at 11%!!! Hey I’m Ashleigh, also known as the girl who’s organs are falling out of her Va-jay-jay. I was stunned. You don’t want to hear about my weak, spastic legs, painful purple feet, unreliable GI system, the ins and outs of self-catheterization, or how boring MS fatigue can be. Sick Boy Motorcycles 616 Main Street Deadwood, South Dakota 57732 [email protected] (605) 571-1003 (mountain time) They chat about what it is like to be sick. But, I’ve been growing more appreciative of the simplicity of labels. The show started with three best friends who recognized that when faced with difficult situations, illnesses and diseases, people tighten up, they get awkward, and they simply don't know what to say. ​ Advancing MS can be a moving target, but when things are relatively stable, disease management becomes habit, automatic, like brushing your teeth. So, again, I’m not going to let anyone else tell me who I am, and I’ve learned that, at least to some extent, people will believe what you believe about yourself. ), but sometimes talking about health masks the real issue, which is that people of all sizes deserve respect and fair treatment, regardless of their health status. As a hospital social worker, I often hear reactions like “I did not see this coming,” “I’m not financially ready for this” or “I’m the main breadwinner, how can I provide for my family now that I’m sick?”, Labels. I grew up in Medellin, Colombia, the City of Eternal Spring, where the weather is always perfect but drug cartels waged wars through the late 80s and early 90s. Which means, I had Anal Cancer, which had spread to my lymph nodes. The show started with three best friends who recognized that when faced with difficult situations, illnesses and diseases, people tighten up, they get awkward, and they simply don't know what to say. I thoroughly appreciate the beauty of ambiguity, of living in a world of colour instead of black and white. A culmination of his affinity for laughter and education, Jeremie founded Sickboy Podcast which he produces and hosts with his two best friends. And I could read A Prayer For Owen Meany (John Irving), again and again. So many reasons to not write a blog. As you likely know, Taylor is currently stranded in Ecuador. I encourage you to do some research on mental illness—and the many different kinds there are—so that you can be supportive instead of offensive. Summer Denim. Despite my healthy lifestyle, at 22 years old, I was diagnosed with. Here’s a list of general questions and assumptions that I’ve come across about OCD and eating disorders. I loved jogging and rumba aerobics (now known as Zumba), and was grateful to have wholesome, fresh food available. Sickboy Crew - Unisex T-Shirt. My mind was a rollercoaster. Sickboy Admin May 25, 2016 Comment. In less than a fortnight I went from having a ‘likely hernia’ to a biopsy-confirmed Squamous Cell Carcinoma, up my bum. Regular price From $20.00 . So I walked to the emergency room. Their show is for people to talk about what it's really like to live with disease (and for its hosts to tell a few R-rated jokes along the way). We spent most of the days on FaceTime with Louis so he didn’t miss anything. The guys are hilarious while also discussing pretty serious health issues. Because it's named after him. 9,9 k hou hiervan. Sickboy podcast producers and co-hosts Brian Stever, Jeremie Saunders and Taylor MacGillivary Photograph: Scott Munn. I have what is called a pelvic organ prolapse and it’s pretty painful and shocking when you first notice it. I’d never seen myself as less-than, but suddenly others did. Ardra Shephard is a devastating illness expert. 13.9k Followers, 542 Following, 534 Posts - See Instagram photos and videos from Sickboy Podcast (@sickboypodcast) With no family history, an active & healthy lifestyle, and an otherwise clean bill of health… I was definitely a little surprised when, at 26 years old, I heard the words “You have cancer”. Note: they are far from medical professionals which makes some of the stuff that comes out of their mouths utterly hilarious. It’s frank; it’s funny; it’s what you’d want your best friend to tell you about what it’s like to live with chronic illness. Listen Up: Sickboy Podcast It’s being able to unapologetically talk about being sick. Jeremie’s life expectancy is shortened. By twenty-eight: I was done - ‘cooked,’ as they say. Sickboy Podcast. Sickboy is more than just a podcast. It was a bit of a draggy foot that I credited to being overweight and out of shape. At this point I knew it wasn’t a hangover, but I really thought I just needed some antibiotics. Sickboy Podcast is hilarious, ridiculously insightful and absolutely determined to break down the stigma associated with illness and disease! Chaos ensues. THE LESSON COVID-19 TAUGHT ME ABOUT LIVING WITH CMT DISEASE, 4 Life-Changing Products for People with Neuropathy & Hand Weakness, THE LEG BRACE FRIENDLY DENIM & BOOTIES I’M FALLING FOR NOW, Lessons I’ve Learned about Life & Disability at 50. They chat about what it is like to be sick. 299 Likes, 53 Comments - Sickboy Podcast (@sickboypodcast) on Instagram: “Hey #Haligonians! The podcast helped me to realise I may have these medical conditions but it isn’t so bad! Cozy AF with a slick Sickboy Banner across the front so you can rep your favourite Podcast like a boss. ", Paying For Chronic Illness W/ Dina A Hospital Social Worker, My Entire Family Is Dead - Managing Grief w/ David Garner, The Man Without a Pulse: Cardiomyopathy & Heart Failure, Be There: Eating Disorder w/ Kenzie Brenna, I Was Deaf, But Now I Hear: Profound Unilateral Hearing Loss, A Childbirth of Nightmares: Pelvic Organ Prolapse. Since it is our first baby we don’t truly know the full experience we missed out on. Want us to do a live show next month? If Justin bought our stuff, he'd probably buy this one. He lives with the genetic lung disease Cystic Fibrosis. If I can empower other women with disabilities to feel this, and to be able to say this about themselves, well, that’s everything. It never occurred to me that this was something I was expected to give up, but that is kind of what society demands. *Ticket* Sickboy LIVE IN Edmonton @ Foundry Room - May 15, 2019. Join hosts Jeremie, Brian and Taylor as they hangout and laugh about the absurdity of illness and life! Sickboy Podcast is the brainchild of 3 friends, one of which has cystic fibrosis. Sickboy Crew - Unisex T-Shirt. It's a movement.A community built on the foundations of compassion, vulnerability, and humour. Halifax, Nova Scotia, Canada. You find a routine, and even this fucked up situation becomes kind of normal. It may seem diminishing to call myself a handicapped gay kid…. 9.7K likes. Sickboy Admin May 12, 2016 Comment. Without further ado…. She has lived with multiple sclerosis for more than 15 years. In Sickboy, you'll find no stiff advice from doctors, or buttoned-up discussions about diseases and treatments.The podcast’s hosts Jeremie Saunders, Brian Stever, and Taylor MacGillivary want none of that. School was one of his favorite parts of life. Meet Ardra Shephard of Tripping on Air and Sickboy Podcast: Ardra Shephard is a devastating illness expert. JOIN OUR PERFECTLY IMPERFECT TRIBE, Where Your Disability is Not an Accessory. “If all you can do is crawl, start crawling.” (Rumi), Listen to us talk with Ardra about life with MS on the EmBRACE It Podcast Season 2 Episode 2. I thought maybe I had a migraine. Tag 4 friends you’d bring and write a short…” A week later I couldn’t see out of my painful eye and was suddenly deaf in one ear. Anne Shirley had a profound impact on me growing up. He married Bryde MacLean in 2011. It's taken away Jeremie's patience with Tay's long-windedness. Bryson would be full of joy each morning when the school bus stopped in front of our house. My name is Melissa, I’m 29 and I have Profound Unilateral Hearing Loss. Several tests and 5 weeks later, I’d lost vision in both eyes, plus my feet and face were numb. I’m not going to fade into the background, and I will not be othered. She has lived with multiple sclerosis for more than 15 years. Sickboy Podcast. We are Sickboy Podcast and we're absolutely determined to break down the stigma associated with illness and disease! Sickboy Admin May 28, 2016 Comment. Then you're in the same as most other people.. XLP is called an orphan disease as it is rarer then rare. Maybe by allowing myself to fit inside a box, I free myself to see what is on the outside. Epic hangover was also a possibility. Like, how were we ever happy before Netflix? These things matter. But I knew I was done. I had no control over emotions or thoughts and I didn’t know why. In 2013, he appeared in the horror anthology film V/H/S/2. Are you currently thinking what the heck is that? Spiritualism > Alcoholism: Addiction & Recovery, The Arthritis Dietitian: Rheumatoid Arthritis and a disease from IKEA, Recommendations for Grieving w/ Bryde MacLean, "Stage 4 Breast Cancer?? Look & Feel Your Best With The LatestTips, Hacks & Trends Through those uncertain and stressful teenage years, I tried to live a healthy life. I can argue until I am blue in the face that fat people can be healthy (which they can! Ever heard of XLP? Her blog Tripping On Air is the irreverent, insider-scoop about MS that manages to inspire without ever being saccharine. As far as a go-to piece, it could be anything from my Soia and Kyo moto jacket, to a pink cocktail dress, to my favourite, worn-in yoga pants. Great podcast I stumbled spin this podcast while searching for information after being diagnosed with a pituitary tumour and also Addison’s disease. I will not let anyone tell me who I am. When people get diagnosed with chronic illness, their worlds are turned upside down. Follow @sickboypodcast on Instagram for more shenanigans like this! This is especially frustrating when the world depends on you being able to communicate effectively and efficiently. Sickboy Admin April 22, 2019 Comments Older. It’s all in the details. I was filled with adrenalin so I was ok with doing everything myself. The following few days in the hospital were a blur. If I really think about it, it’s still kind of stunning. Sickboy Podcast. Part of the film was directed by Blair Witch Project director Eduardo Sanchez. I was having trouble walking, and an MS diagnosis was confirmed. Ashifa Kassam in Toronto @ashifa_k. 13.4k Followers, 1,967 Following, 64 Posts - See Instagram photos and videos from @sickboykks I was 23 and woke up one day with a stabbing pain in my eye, and for about a week I was tired like I’d never been tired before. I never wanted to be an activist, but we need to collectively change our minds about how we view disability. 9.5K likes. By not speaking up, I was contributing to the very ideas I was rejecting. I’m a nerd for learning languages. As a member of Sickboy Podcast, he is known for living with the genetic lung disease cystic fibrosis. Her blog Tripping On Air is the irreverent, insider-scoop about MS that manages to inspire without ever being saccharine. 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